The Big Surprise

In a little more than 12 hours, we will be embarking on our first ever family vacation. We surprised Giovanni tonight with a call from Mickey Mouse, letting him know that he will joining him on a Disney cruise to the Bahamas. While I doubt he fully gets it, he is very excited about the fact that he gets to go on an airplane and a boat.

This is our (my husband and I) first real vacation since our honeymoon 8 years ago, with the exception of a few weekend trips to the Jersey Shore and Canada. We were so nervous about not being able to go, but his neurologist in Boston gave us her blessing when we saw her two weeks ago. His local neurologist was excited for us too as I spoke with him briefly today. I will post pictures as we go so stay tuned :)

After speaking with his local neurologist today, we decided that now is a good time to increase his Trileptal. We need to have blood work in two weeks to make sure that his sodium levels don't drop too low. We also ended up having to start a vitamin D supplement as his levels were pretty low. With the exception of his eating, everything seems stable at this point (knock on wood). We are still not getting many solids into him, and the majority of his nutrition is coming from protein shakes. If this still isn't better by the time we go back to the neurologist in a couple weeks, some decisions will have to be made.

For now we are going to focus on our exciting vacation, and just enjoy being together as a family. I can't wait to see Giovanni's face when he finally meets Mickey Mouse!